Research
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Starting your PhD: Lessons learned from almost and new graduates
Abstract:
This chapter presents a reflective account of the doctoral journey as experienced by three PhD candidates from diverse backgrounds in the humanities.
Drawing on personal stories, the authors explore the realities of starting and navig...
Publication · September 12, 2026
Disability as Method: Researching Intracranial Hypertension through Crip-Chronic Time
Abstract:
This chapter reflects on a doctoral study that employed a transformative paradigm to explore the lived experience of Intracranial Hypertension, using Critical Disability Studies as a methodological approach. Centring the question 'whos...
Publication · September 12, 2026
Digital Control as Institutional Abuse: Evidence from the Australian Disability Royal Commission on Technology Restrictions for People with Intellectual Disability
Abstract:
This paper examines digital control as a form of institutional abuse affecting the digital citizenship and human rights of people with intellectual disability in Australia, including equitable access to digital services, adequate prov...
Publication · September 12, 2026
Necessarily Oppositional: Digital Chronic Illness Communities as Sites of Resistance and Knowledge Production
Abstract
This provocation examines how digital chronic illness communities have evolved into ‘necessarily oppositional’ spaces where alternative forms of knowledge and care emerge in response to systemic ableism in healthcare. The COVID-19 pand...
Publication · September 12, 2026
Automated Ableism: Disability Surveillance, Equity, and Bias in Australian Social Services
Abstract
This chapter problematises the expansion and reliance on algorithmic programs and surveillance by welfare agencies as determining factors for eligibility for disability services and supports. By examining three case studies from the Aus...
Publication · September 12, 2026
Everyday Food Practices among people living with Parkinson's disease
Publication · September 12, 2026
"Just Lose Weight": Weight-based Medical Bias and Experiential Expertise in Intracranial Hypertension
Abstract:
Drawing on findings from a doctoral study of 563 adults with Intracranial Hypertension (IH), a complex neurological disorder, I show how weight bias shapes healthcare experiences and demonstrate how first-person perspectives are cruci...
Publication · September 12, 2026
Borderlands and Battlefields: Epistemic Selectivity and Bounded Language in the Chronic Illness Experience
Abstract:
This paper develops the concepts of bounded knowledge and epistemic selectivity to examine how chronic illness-disability is constrained within medical and disability frameworks, each of which offers only a partial perspective.
Drawing ...
Publication · September 12, 2026
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